Thursday, November 14, 2013

The Tin Man's Heart Watch Day #18

 

Gainesville check-up #1 of ???

As part of Holden's pre-transplant release we have to make our way up to Gainesville for bi-weekly check ups. (It's a little over an hour, and it has Burrito Bros. No complaints) The usually uncooperative Holden surprisingly held still for both his echo and EKG making the trip a lot shorter than we ever expected. Clearly a sign of maturity.

Wednesday, November 13, 2013

The Tin Man's Heart Watch Day #17

One of the CHD transplant stories we've been following is Owen (Here is a link to his story). It's a great follow, as he was a kid who was in somewhat of a similar situation as Holden. He received his new heart on July 17th, and came home relatively quickly.

Follow them on Facebook! Owen's Superhero Heart

Tuesday, November 12, 2013

The Tin Man's Heart Watch Day #16

OH THE HUMANITY! We knew this day was coming, we just had never prepared ourselves. In fact, it was one of those moments where you throw your head into the sand and ignore the cruel  reality. It's easier that way. Why pull hair over a future problem when it's not an issue NOW?

If you'll recall, after Holden inadvertently stumbled upon AT&T U-Verse's fish based advertising channel he was absolutely obsessed. At least once a day we'd deal with something like this.



(Oscar-worthy parental sigh)

Monday, November 11, 2013

The Tin Man's Heart Watch Day #15

My office was closed for the Veteran's Day holiday. (Happy Veteran's Day to Holden's cardiologist at that). I took advantage of the time off and joined Nicole and Holden at his speech therapy session in the morning. Afterward, we took him to the park to butter him up before using our size advantage to force him to join us on a jaunt to the outlet mall for some fashionable outerwear.

As a reward for his stellar behavior in that regretful madness, we swung by the Bass Pro Shops on our way home to gander at the giant fish tank. (For those not familiar with said Bass Pro Shops tank, strap on a pair of goggles, head down to your swampiest bog and spend a few minutes underwater peering through the murky green.)

Bass Pro Shops isn't a store, it's a freaking test. Not that I go in and spend all my money on a trolling motor or anything, it's just so large you can easily get lost. Dare I call it a southern IKEA?

Upon entering the venue we were blasted with an insane dose of Early Christmas. I'm not talking the, "Wow, Christmas lights are already for sale at Target," or the "It's October and Publix has decorated their parking lot" type Christmas. It was music, employees dressed as elves, and live Santa Claus type Christmas. (You might recall, Holden's first Santa picture came at this location in December of 2011)

Holden seemed to enjoy the idea of a mid-November's Yule, so we obliged. The pictures are below.


After debate (Swinging around the carousel 3 times, and declaring "no" to every available Bass Pro Shoppy-like creature), Holden settled on the bear. I've yet to see any human being actually tame and saddle up a bear. It would be kind of silly, seeing as cartoons taught me bears have two interests in life and neither of them involve extensive and labored travel.





Holden's physical therapist would be so proud. 



Of course, no mid-November Christmas is complete without a photograph with Ol' Saint Nick. We weren't expecting such a meeting so Holden's attire can best be described as tattered. He met Santa with the patience of a starved puppy, and of course the camera lady erred in her first shot (was told it was a picture of the ground, and half-a-Holden). The reshoot required some talent, thus the reason I am photobombing to the left. There is juice in that cup, and Holden would probably let you know if you were there.

Merry um November Thank-Christma-kuh

Sunday, November 10, 2013

The Tin Man's Heart Watch Day #14

There have been a lot of resources that we've turned to since learning about Holden's transplant needs. This is one that is something we've looked back to and really appreciated.

It was kind of odd, because only a few days after the T word was first used, NBC's Dateline aired this piece about a family whose bond helped them pull through their childrens' (yes multiple) heart issues. Check it out (it's six videos)

You can check out their blog here.


Visit NBCNews.com for breaking news, world news, and news about the economy


Saturday, November 9, 2013

The Tin Man's Heart Watch Day #13

We've slowly been teaching Holden the right and wrong way to drive his automo-toy. For example, he just can't ride the gas when he's hit a wall. The automo-toy, while well constructed, doesn't possess the ability to drill its plastic frame through concrete.

His biggest issue is acceleration and braking. It's getting better, but still a bit jagged.

Think robo-cart on a crowded aisle at Publix (or watch the video below).

Friday, November 8, 2013

The Tin Man's Heart Watch Day #12

It's okay for mom and dad to go PowerLite at Tijuana Flats, right? Holden still digs it.