Wednesday, November 6, 2013

The Tin Man's Heart Watch Day #10

The first Wednesday of every month is our Mended Little Hearts meeting. The Orlando chapter was started in May of 2012 and has been an amazing asset for us as we've walked through Holden's journey. Besides, it is always fun to round up all the heart kids and watch them run around recklessly for 10 or so minutes before they tire out. (True story: Someone, who shall remain unnamed, but might be the father of Holden, actually organized and put on a July picnic for the group. It was a billion degrees and there were kids with heart issues subjected to the shelter-less heat. Genius right?)

Last night, was the first meeting since we've announced Holden's need for transplant. We were fortunate enough to be joined by the American Heart Association of Greater Orlando and adult CHD survivor Amanda Jean who shared her own story. I know the doctors and nurses are great at giving incite, but nothing beats the war stories like hearing it from the soldier themselves.

If you're a CHD survivor, parent, doctor, nurse, or support staff, join us sometime. We have refreshments! MMMmmm...refreshments!

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