We were proud to be invited to the American Heart Association's Heart Ball last night. Holden hammed it up enough to make his appearance known. We gave him the ol' Serge A. Storms look for "Safari Night" too. Special Thanks to everyone at the American Heart Association for their continued work in the CHD community.
Trey was invited to write a blog post for Arnold Palmer Hospital highlighting some of the questions we had when learning about Holden's CHD. Please check it out!
February 7th is the start of Congenital Heart Defect Awareness Week! Join us for the Orlando Chili Cook-Off next Saturday at Festival Park by the Executive Airport. We'll be slinging some of the finest chili on earth in the name of Congenital Heart Defect Awareness.
DETAILS:
Date: February 9, 2013
Time: Noon - 6PM (Warning: Chili runs out quick. The earlier the better)
Location: Festival Park, Downtown Orlando (Milk District)
Tickets: $7 if you buy early at OrlandoChiliCookoff.com
This photo is of my cousin, Reagan. In her letter to Santa she elected to not ask for a video game, or an iPod, or something else digital and exciting. She instead asked the jolly old elf to fix Holden's heart. +
Reagan's wish comes on the heels of the unfortunate news that Holden would need another operation to help correct another issue in his heart. That surgery will be taking place tomorrow morning.
When my mom texted me that picture of Reagan I was 4 deep in line at Tijuana Flats. As manly as a I believe myself to be, I couldn't hold it in. As I tearfully gave my order, I just looked at the high schooler behind the register and said, "Tijuana black bean and chicken, and pardon me, I'm just a huge fan of the Flats."
The little man is doing very well right now, that is part of the reason for the quick turnaround between diagnosis and surgery. No sense in waiting for his health to decline to fix what they know they need to fix.
Reagan giving her Christmas wish to Holden is just one example of the MANY great displays of support that our family, friends, and even complete strangers have done for us. We don't think we can ever thank you all enough for the outpouring of support you've given us. Holden has bounced back so quickly from all his operations, we are sure that the same will happen here, no matter how unexpected and delicate it is.
When Holden comes home it will be the greatest Christmas/Hanukkah gift ever. (Putting that Nintendo I found under the tree in 1989 to shame).
Show your support tomorrow, wear a shirt, post his video, do whatever you wish. And most importantly...TEAM TIN MAN UNITE! GO HOLDEN!
We're sorry we haven't updated this lately. Holden has gone super mobile. The days of simply placing the kid in one spot with the direct knowledge that he'll remain in that one spot are long gone. When you're not chasing the kid these days, you're trying to out think his 14 month old mind..."where, pray tell, is this kid going next?"
It's an impossible science, so I've developed a diagram to describe the situation.
We've had a busy few months though! Where do I start? (I'll warn you, this is broken down all nerdy like)
