It was cold, dreary, rainy, and wet, but we couldn't have asked for a better day.
First place. Thank you to all who helped us make this possible. Pictures below.
#CHDAware
Sunday, February 9, 2014
Opening CHD Awareness Week with a Bang
It was cold, dreary, rainy, and wet, but we couldn't have asked for a better day.
First place. Thank you to all who helped us make this possible. Pictures below.
#CHDAware
Wednesday, February 5, 2014
CHD Awareness Week 2014
As continue to build a charitable foundation to carry on Holden's fight, we step into American Heart Month and Congenital Heart Defect Awareness Week (February 7-14th). These are some of the biggest days of the year for CHD families. I know we've listed some events on social media, but I thought it might be a little less scatterbrain to put it all on one blog page.
All Week - The Holden Flynn Fund: We have started off with an absolute bang, but still aren't where we need to be to comfortably meet the start up costs for the foundation. You can still donate (or encourage others to donate!)
Donations to Holden's fund can be made payable to "Schwab Charitable Fund for the benefit of the Holden Flynn Fund" and should be sent to:
We are working on the online donations NOW, and hope to have that up and running by FRIDAY.
Now through February 14th - NEED VALENTINE'S DAY FLOWERS? Windermere Flowers and Gifts will be donating $1 from every arrangement ordered for pickup or delivery February 13th or 14th to the Holden Flynn Fund. You can order by calling, 407-296-9002, or by going online to www.windermereflowersandgifts.
February 7th - Wear Red for CHD Awareness! Please spread the word and tell people WHY or WHO you are wearing red for. Send us your pictures! Be crazy! We want to see them. And use the hashtag #CHDAware #RedforHolden (or whoever you're wearing red for)
February 8th - The Orlando Chili Cookoff - Join us with Mended Little Hearts of Orlando at Festival Park by the executive airport. We'll be wearing our red, and spreading CHD Awareness via the power of chili.
Tickets can be purchased at this link!
We have a large spot located with our backs to Primose Drive. We're also conveniently within shouting range of the Pepto Bismol distribution tent and the Port-o-Johns.
February 15th - Orlando Solar Bears Game: We'll be at the Orlando Solar Bears game for American Heart Association night. Tickets are only $15 and a portion of the proceeds goes to Mended Little Hearts of Orlando Heartwalk team. Holden was part Canadian anyway :-).
Tickets for Mended Little Hearts can be purchased here.
Password: HEART
Any other ideas or plans? Let us know. We're open for anything to spread the word.
All Week - The Holden Flynn Fund: We have started off with an absolute bang, but still aren't where we need to be to comfortably meet the start up costs for the foundation. You can still donate (or encourage others to donate!)
Donations to Holden's fund can be made payable to "Schwab Charitable Fund for the benefit of the Holden Flynn Fund" and should be sent to:
David Vaughan Investments, Inc.
Attn: Amy Cowen
5823 N. Forest Park Drive, Peoria, IL 61614We are working on the online donations NOW, and hope to have that up and running by FRIDAY.
Now through February 14th - NEED VALENTINE'S DAY FLOWERS? Windermere Flowers and Gifts will be donating $1 from every arrangement ordered for pickup or delivery February 13th or 14th to the Holden Flynn Fund. You can order by calling, 407-296-9002, or by going online to www.windermereflowersandgifts.
February 7th - Wear Red for CHD Awareness! Please spread the word and tell people WHY or WHO you are wearing red for. Send us your pictures! Be crazy! We want to see them. And use the hashtag #CHDAware #RedforHolden (or whoever you're wearing red for)
February 8th - The Orlando Chili Cookoff - Join us with Mended Little Hearts of Orlando at Festival Park by the executive airport. We'll be wearing our red, and spreading CHD Awareness via the power of chili.
Tickets can be purchased at this link!
We have a large spot located with our backs to Primose Drive. We're also conveniently within shouting range of the Pepto Bismol distribution tent and the Port-o-Johns.
February 15th - Orlando Solar Bears Game: We'll be at the Orlando Solar Bears game for American Heart Association night. Tickets are only $15 and a portion of the proceeds goes to Mended Little Hearts of Orlando Heartwalk team. Holden was part Canadian anyway :-).
Tickets for Mended Little Hearts can be purchased here.
Password: HEART
Any other ideas or plans? Let us know. We're open for anything to spread the word.
Wednesday, January 8, 2014
The Holden Flynn Foundation, Inc.
Nicole and I always said that once Holden's heart issues were stabilized, we were going to do more for the CHD community. This past December our family took the steps to create a foundation in Holden's name to assist us financially when we had to relocate to Gainesville. With his passing, we are still going through with their plans, but changing the direction of the foundation to carry on Holden's fight and spirit.
As many of you know Holden always enjoy his wagon rides, (or parades as it was sometimes called). We'd take him all over the place, and the slightest pause was greeted to with a quick command of "Go!". As his
health declined, the number of IV’s he required sometimes limited that wagon
time, or made it difficult to travel because of the number of people needed to participate.
It was tough for him, because Holden needed that time. It was his his time.
We are going to take a portion of the initial money donated to the Holden Flynn Fund and purchase of some wagons and cars fitted with IV poles for the hospital. We want to give other hospitalized children the opportunity to go on parades and
experience those same joys and freedoms that Holden felt regularly.
The ultimate goal of the Holden Flynn Fund is to create a foundation that will honor the spirit of our son and his battle with CHD. The ball is rolling, and in the coming weeks and months we will have more details as we assemble the appropriate paperwork. If anyone wants to assist, please feel free to email us, and we'll be in touch in the future.
Donations to Holden's fund can be made payable to "Schwab Charitable Fund for the benefit of the Holden Flynn Fund" and should be sent to:
David Vaughan Investments, Inc.
Attn: Amy Cowen
5823 N. Forest Park Drive, Peoria, IL 61614
OR ONLINE (Please understand that the donations added via Fundly will be later wired to the Schwab Charitable Account. Tax deduction letters will come through Fundly and NOT Schwab) For LARGER donations you are encouraged to directly send a check or money order.
All donations are tax deductible.
OR ONLINE (Please understand that the donations added via Fundly will be later wired to the Schwab Charitable Account. Tax deduction letters will come through Fundly and NOT Schwab) For LARGER donations you are encouraged to directly send a check or money order.
powered byAll donations are tax deductible.
Thank you, Trey and Nicole Flynn
Please feel free to share this with your family, friends, etc.
Tuesday, January 7, 2014
The Tin Man's Heart Watch Day #65
With heavy hearts, we write this.
At 3:30 PM yesterday Holden Joseph Flynn passed away in the loving arms of Nicole and with family by his side. He lost his battle with congenital heart disease, but fought like heck until the end. We will miss our son. Our Tin Man. Our hero.
Friday, January 3, 2014
Thursday, January 2, 2014
The Tin Man's Heart Watch Day #61 (HAPPY NEW YEAR)
Holden? He didn't make it to 7:30pm, much less midnight.
Mom and dad conquered dinner at a local establishment. While driving back to the temporary abode we drove past the campus at the University of Florida. In our years at the school, we were never around for New Years, so checking out the campus life on this kind of night intrigued us.
There were maybe 5 students in town on New Years Eve. Every establishment across from campus was closed...except for one spot...When we saw the lights on we pulled over and walked into one of our old college stops for a beer. It was nice. First time we got a spot on the street up front, and the first time we got a booth. We even ordered the Natural Light or whatever skunky swill they had for $1. You'll see in the picture below, it was relatively empty.
Despite those shenanigans, we didn't last long, and found ourselves back at the temporary abode to watch the ball drop. I called at 11:45 to check on Holden, telling the nurse we were going to bed. When she asked why we weren't staying up until midnight, I replied, "We are, but only to make sure the world didn't end."
Happy New Year!
The Flynns.
Mom and dad conquered dinner at a local establishment. While driving back to the temporary abode we drove past the campus at the University of Florida. In our years at the school, we were never around for New Years, so checking out the campus life on this kind of night intrigued us.
There were maybe 5 students in town on New Years Eve. Every establishment across from campus was closed...except for one spot...When we saw the lights on we pulled over and walked into one of our old college stops for a beer. It was nice. First time we got a spot on the street up front, and the first time we got a booth. We even ordered the Natural Light or whatever skunky swill they had for $1. You'll see in the picture below, it was relatively empty.
Despite those shenanigans, we didn't last long, and found ourselves back at the temporary abode to watch the ball drop. I called at 11:45 to check on Holden, telling the nurse we were going to bed. When she asked why we weren't staying up until midnight, I replied, "We are, but only to make sure the world didn't end."
Happy New Year!
The Flynns.
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