We'll have a Heart Month wrap-up on here soon, but we wanted to take a minute to recognize everyone at Strong Films. In November of 2011 Mike Schmidt from Arnold Palmer Hospital reached out to us, asking if we'd allow Holden's story to become the feature of a short for the hospital. We agreed, and Mike immediately set up a meeting with the film's director, Jon.
On a wet November Saturday, a beard friendly Jon Strong came skipping into our driveway on the back of a Vespa. For an hour, he threw a calliope of questions our way. Filming began in January of 2012. Holden's surgery wasn't part of the original plan. If you'll recall, Holden's first surgery was scheduled for a Friday. We found out he'd be going under the knife two days before that. Jon was supposed to meet us that weekend to film various auxiliary scenes for the film. I called him Thursday cancelling, explaining why I had to delay his work. He paused and asked, "If I can get permission, do you mind if I film the surgery?" I didn't really pause all that long, "Sure, why not?" I won't lie, my focus wasn't on Jon's question. I was so windblown blown the surgery, he probably could have tricked me into signing the deed to my house over to him at that time. Jon text me that night saying he was still waiting to hear from the doctor.
I didn't hear from him again until the next morning. And when I say morning I mean like 5 AM, riding to the hospital, chugging coffee to fight anxiety. Jon had beaten us to the hospital, and was ready to film. We arrived, met Jon and his friend Chris and they started filming immediately.
We really don't remember the cameras. The perfect cocktail of anxiety, a complete lack of sleep, and caffeine will do that to you.The Tin Man was released on March 31, 2012.
When Jon described his vision of the film to us, we had no clue it would come out the way did. To say it exceeded our expectations is an understatement. In many ways Jon gave us a totally new point of view on our own story. I know other people felt the same way.
In November The Tin Man won a marketing award for Arnold Palmer Hospital. A few weeks ago it netted Strong Films the prestigious "Best in Show" at the Orlando ADDY Awards.
Congratulations to Strong Films, your hard work has paid off, and will continue to reward you. Thank you for letting us be a part of your success.
Sunday, March 31, 2013
Sunday, March 10, 2013
Heart Ball - 2013

We were proud to be invited to the American Heart Association's Heart Ball last night. Holden hammed it up enough to make his appearance known. We gave him the ol' Serge A. Storms look for "Safari Night" too. Special Thanks to everyone at the American Heart Association for their continued work in the CHD community.
We're growing!
Sunday, February 17, 2013
What I Wish I’d Known When My Son was Diagnosed with a Congenital Heart Defect

Trey was invited to write a blog post for Arnold Palmer Hospital highlighting some of the questions we had when learning about Holden's CHD. Please check it out!
Trey's Illuminate Blog Link
Thursday, February 14, 2013
Holden and the family on Fox 35 for Valentine's Day
We were invited to be on Fox 35 with other families in Orlando to share our stories about Holden's surgeon Dr. William DeCampli. Check it out!
Saturday, February 2, 2013
Orlando Chili Cook-Off
February 7th is the start of Congenital Heart Defect Awareness Week! Join us for the Orlando Chili Cook-Off next Saturday at Festival Park by the Executive Airport. We'll be slinging some of the finest chili on earth in the name of Congenital Heart Defect Awareness.
DETAILS:
Date: February 9, 2013
Time: Noon - 6PM (Warning: Chili runs out quick. The earlier the better)
Location: Festival Park, Downtown Orlando (Milk District)
Tickets: $7 if you buy early at OrlandoChiliCookoff.com
Any questions? Comments? Let us know!
Wednesday, December 26, 2012
Christmas 2012

Not ideal, but still special. Thank you to everyone at Arnold Palmer Hospital for making us feel "at home."
Monday, December 10, 2012
Tomorrow
This photo is of my cousin, Reagan. In her letter to Santa she elected to not ask for a video game, or an iPod, or something else digital and exciting. She instead asked the jolly old elf to fix Holden's heart. +
Reagan's wish comes on the heels of the unfortunate news that Holden would need another operation to help correct another issue in his heart. That surgery will be taking place tomorrow morning.
When my mom texted me that picture of Reagan I was 4 deep in line at Tijuana Flats. As manly as a I believe myself to be, I couldn't hold it in. As I tearfully gave my order, I just looked at the high schooler behind the register and said, "Tijuana black bean and chicken, and pardon me, I'm just a huge fan of the Flats."
The little man is doing very well right now, that is part of the reason for the quick turnaround between diagnosis and surgery. No sense in waiting for his health to decline to fix what they know they need to fix.
Reagan giving her Christmas wish to Holden is just one example of the MANY great displays of support that our family, friends, and even complete strangers have done for us. We don't think we can ever thank you all enough for the outpouring of support you've given us. Holden has bounced back so quickly from all his operations, we are sure that the same will happen here, no matter how unexpected and delicate it is.
When Holden comes home it will be the greatest Christmas/Hanukkah gift ever. (Putting that Nintendo I found under the tree in 1989 to shame).
Show your support tomorrow, wear a shirt, post his video, do whatever you wish. And most importantly...TEAM TIN MAN UNITE! GO HOLDEN!
-Trey, Nicole, and Holden
Reagan's wish comes on the heels of the unfortunate news that Holden would need another operation to help correct another issue in his heart. That surgery will be taking place tomorrow morning.
When my mom texted me that picture of Reagan I was 4 deep in line at Tijuana Flats. As manly as a I believe myself to be, I couldn't hold it in. As I tearfully gave my order, I just looked at the high schooler behind the register and said, "Tijuana black bean and chicken, and pardon me, I'm just a huge fan of the Flats."
The little man is doing very well right now, that is part of the reason for the quick turnaround between diagnosis and surgery. No sense in waiting for his health to decline to fix what they know they need to fix.
Reagan giving her Christmas wish to Holden is just one example of the MANY great displays of support that our family, friends, and even complete strangers have done for us. We don't think we can ever thank you all enough for the outpouring of support you've given us. Holden has bounced back so quickly from all his operations, we are sure that the same will happen here, no matter how unexpected and delicate it is.
When Holden comes home it will be the greatest Christmas/Hanukkah gift ever. (Putting that Nintendo I found under the tree in 1989 to shame).
Show your support tomorrow, wear a shirt, post his video, do whatever you wish. And most importantly...TEAM TIN MAN UNITE! GO HOLDEN!
-Trey, Nicole, and Holden
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