Showing posts with label Arnold Palmer Hospital for Children. Show all posts
Showing posts with label Arnold Palmer Hospital for Children. Show all posts

Monday, April 14, 2014

Thank You Knight-Thon
















Last Saturday, we were invited out to UCF for their annual Knight-thon Dance Marathon (If you’ll recall, we took Holden out last year). It’s a student run event where young adults shamelessly sacrifice their bodies for 20 hours by continuously standing on their feet to raise money for Children’s Miracle Network Hospitals. It’s undoubtedly a daunting task, one which requires a carefully calculated and balanced regiment of hydration and caffeination. In the end, these students are probably left to be human slugs, pulling together whatever energy they have left and dragging their bodies carefully across campus and into their beds. But it’s all for an awesome cause.

The 2014 event featured around 800 dancers and set a record and raised $392,381.65. It’s something that everyone who participated should be proud of, and we say that having personally witnessed what this money go towards.

That being said, sometimes we forget the impact that Holden had on others' lives, that includes these students. Shortly after Holden’s passing, they reached out to us, sent us cookies, and showed up in droves to his service. When they asked if we’d join them on Saturday, we didn’t hesitate to say yes.

As we got to the arena, we were greeted by a giant heart penned with Holden’s name and covered on hundreds of silver signatures. We walked into the venue, and were approached by several students on the Knight-Thon committee. Each was wearing a red heart with a Tin Man hat, and the name Holden on it. To the side of the dance floor, sat a table of pictures of Holden. The balloon logo? If you look closely you’ll see the word, “Tin Man” placed in it.



To say it was an emotional moment is an understatement, but it was all so well put together. As Knight-Thon director Chelsea Trynz walked out on the stage to open the event, she was followed with the aforementioned giant heart. She braced the microphone, and began to speak about Holden and his fight. You could tell it was tough for her to do, but she hit a homerun. 

When we took the stage, we were so choked up with the kind words that Chelsea had said, that I struggled to throw together complete sentences, and I apologize for that. 

Written words make it tough to express our gratitude towards the gestures of Knight-thon…So much work went into not only standing for 20 straight hours and giving up a weekend, but organizing such an event and carrying it through with the success they did. We’ve witnessed the impact that Holden had on their lives, but they’ve had an impact on ours and I know every other Miracle Family feels the same way.

Keep on doing the good deed Knights, and from the bottom of our hearts, thank you.

Friday, December 27, 2013

The Tin Man's Heart Watch Day # 56: Arnold Palmer Saves Christmas


Another amazing film by StongFilms.

 As a parent of a child who has spent two Christmases in the hospital, Arnold Palmer Hospital for Children has always been amazing to us. Jon Strong throws together some amazing, emotional stories. Thank you for allowing us to share the screen with a legend like Arnold Palmer.

Saturday, December 21, 2013

The Tin Man's Heart Watch Day #51


"Your children are born and you love them. And you fall in love with them more and more each day..."


The new film from Jon Strong and strong films, creator of Holden's video "The Tin Man" for Arnold Palmer Hospital for Children. It is amazing. Please take a few minutes and watch and share.


(Holden was a bit sedated today because of some PICC line changes, but he's doing well, now watch this video and be prepared to go hug your children, pets, walls, whatever is closest)

Monday, December 16, 2013

The Tin Man's Heart Watch Day #47



On Monday morning we participated in our second Radiothon for the Greater Orlando Children's Miracle Network (benefiting Arnold Palmer Hospital and Shands Hospital). It's a great way to give back. We'll have the audio/photos up when we fish it out, but always a pleasure to be involved.

Kind of a teaser. 

You can catch Holden's vignette (recorded in 2012) here.


Sunday, December 15, 2013

Wednesday, December 11, 2013

The Tin Man's Heart Watch Day #42

I wish I grabbed more pictures of the creativity that comes with the night shift at Arnold Palmer Hospital. The Mayans would be amazed by some of these things.

Tuesday, December 10, 2013

The Tin Man's Heart Watch Day #41


Check out one of the video boards at Arnold Palmer Hospital! It greeted us on our way out Monday night. Of course we were completely delirious at this point and any sort of radiant light was met with squinted eyes and mere guesstimates of what was before us. So...if this is actually a picture of Nicole thumbs-upping an announcement about some sort of flu outbreak, let us know.

- Trey

Sunday, December 8, 2013

The Tin Man's Heart Watch Day #40

Sometimes (meaning regularly) the nurses have to change Holden's dressing around his PICC line (think, permanent sterile IV.) Because of the aggressive, territorial behaviors that Holden exhibits with such a change, they've had to give him a little something-something to keep him calm for the 10 minute procedure. The effects don't last long, but they'll throw him on the skids for a few minutes.

See below:




Friday, December 6, 2013

The Tin Man's Heart Watch Day #38

As a family we have walked Holden 4872.3 miles around the cardiac unit at Arnold Palmer Hospital.
When Holden was younger, we described them as parades. Parades included fake musical instruments created mom and dad's mouth. Parades included waving drive bys of all the nurses and doctors who were hard at work. Parades put us in control. Control has swayed. Therefore, parades are no longer cool to him.

These days, he's "Cruising the unit". He comes armed with a classy pink (but manly) Little Tykes car he steers through the halls like a bat out of heck. We've got to push it, but he doesn't seem to mind, in fact, if you stop for even a second he'll remind you to go.

Nicole, having a little fun, pulled a video of one of these rides.



Tuesday, December 3, 2013

The Tin Man's Heart Watch Day #35


With his familiarity with the surroundings and wonderful support staff, we know Holden is comfortable at Arnold Palmer Hospital. On Day 35, he started redefining comfort.

Captions?

- I know your communication is limited, but please warn someone before you crack one off like that.

- Holden! If our doctors are required to wear shirts, you are too.

- Your insurance doesn't cover pedicures.

- Burt Reynolds just called...he is jealous.

- Mr. Flynn...you hit the call button?

- I'll leave your gruel on the sink.

- Excuse me. Those rails were designed solely for safety. Not for comfort. There will be no comfort.

Monday, December 2, 2013

The Tin Man's Heart Watch Day #34

Holden was still a wee bit sedated yesterday, so action was minimal at best. Mom and dad spent a good portion of the day cleaning the house.

He awoke for dinner though, His favorite part of staying at Arnold Palmer? Hummus. All. You. Can. Eat. Hummus.

Check out the hummus truck delivering the latest batch o' goods.


Notice the band aid on his arm? A sedated Holden can still remove an IV like a freaking fox. He thoughtfully placed it next to him on the bed and went back to sleep.

Saturday, November 30, 2013

The Tin Man's Heart Watch Day #33


Holden was sedated to get permanent IV line in him. His anesthesiologist even came in to help, ON HIS DAY OFF! Pretty awesome stuff.

As for Holden? He slept all day. He slept all night. He didn't even wake up when dad got erupted at the crazy end of the Auburn-Alabama football game.(Oh, and he didn't have to submit his brain cells to the Florida - Florida State game)

Saturday, April 7, 2012

The Tin Man

As most of you know, Holden was born on October 11, 2011, the very Flynn friendly size of 4lbs 13oz. Shortly after, Arnold Palmer Hospital for Children came to us asking if we’d be willing to share Holden’s story with the masses. Nicole and I didn’t hesitate to say yes. We found a way to take a very tough situation and remain positive. It was important to us, and we wanted others who were in the same situation to know it is possible.

The creative mind, Jon Strong of Strong Films, recorded several hours of footage, everything from doctor’s visits to playtime. What became of it was a film unlike anything we’ve ever seen (granted, I’m a bit biased).

We know many of you have already passed this along to your family and friends. We appreciate everything each of you have done for us. If you haven't had the chance, please share it. Facebook it, Tweet, or whatever it. I can recall the hours before Holden’s first surgery in January, We stumbled across a YouTube video that someone else had put up. It was named “Anna’s Story“, and it chronicled the story a 10 year old girl who had same operations Holden would be going through over the coming months and years. We cried. Not because we were grieving over Holden’s condition, but because we were so excited to see that everything was going to be okay. It helped us so much.

Chances are, someone your friends or family might know might have just been told their child will be born with a CHD. We hope that this video has passed on the idea that there is a lot to be positive about during a tough situation. That positivity we’ve carried with us the last 10 months has been our GREATEST weapon.

http//:bit.ly/thetinman



Of course a BIG thank you to Arnold Palmer Hospital for Children and Strong Films for their work on this project.