The Tin Man's Heart Watch Day #60

Thank you go Grandpa Andy and Grandma Evelyn for getting Holden his new floor mat. 

As appetizing as the idea of letting your kid stew around on the floor of an ICU is, we all feel better knowing there is something tangible between his skin and the ground.

The Tin Man's Heart Watch Day #59

Daddy is back

The Tin Man's Heart Watch Day #58

Holden is all settled in at Shands, and he has developed a personal alarm system. You'll see from the following two photos, he kid wraps his hand around one of the bars when he goes to sleep. When the bar moves, they're coming to mess with him. Quite genius actually.

Luckily, late night contact is minimal, and he's slept pretty well despite being someplace new.

The Tin Man's Heart Watch Day #57

Holden was transferred via a land yacht to Shands yesterday. No issues, just closer to where they'll change his battery. This move was expected after Christmas was over. 

Thank you to everyone Arnold Palmer Hospital for Children for allowing us to stay close to home for the holiday. Thank you to all our family and friends who brought us food, the sweet sweet nectarine known as coffee, and just visited to check up on us. 

We'll have more about the move later! Team Tin Man Unite!

The Tin Man's Heart Watch Day # 56: Arnold Palmer Saves Christmas

Another amazing film by StongFilms.

 As a parent of a child who has spent two Christmases in the hospital, Arnold Palmer Hospital for Children has always been amazing to us. Jon Strong throws together some amazing, emotional stories. Thank you for allowing us to share the screen with a legend like Arnold Palmer.

The Tin Man's Heart Watch Day #55 (Christmas)

We didn't get our Hallmark Channel Christmas movie new heart miracle (I was all ready to announce Ryan Gosling for my role in the made for TV movie.), but the day was still amazing. Thank you to the Arnold Palmer hospital for allowing Holden to escape the madness of the machines for a few hours to spend time with his family. Thank you to the support staff, nurses, and doctors for holding the potential furlough at a secret level that would have the Illuminati blushing. Thank you the the numerous people who made sure Holden was well enough to go home.

I have some pretty solid Christmases over the years, this one was without a doubt, the best ever.

Pictures below. - Trey

The Tin Man's Heart Watch Day #54(b)

 

These are our cousins Jordan and Charley. The other night this picture buzzed through my phone along with a message from our cousin Capresse.

"Jordan wore his Tin Man sort tonight. We talked about Holden's heart as we often do. Jordan said he would just give Holden his."

Background? Jordan and his sister Simone joined our family four years ago last week after being fostered by Capresse and her husband Kenny. While we'll respectfully decline his offer for his heart, it shows how awesome of a kid Jordan is. He's been through a lot himself, but always find a way to make everyone smile.

Merry Christmas!